Parti-CP: Barriers and facilitators for participation in children for cerebral palsy, their siblings and families in Switzerland
Description
The aim of Parti-CP is to gather profound knowledge about how children with CP, their siblings, and their families as a whole experience participation in Switzerland, then use this knowledge to formulate evidence-based recommendations. The mixed-methods study will include four work packages with qualitative and quantitative elements. Parti-CP is nested within the Swiss Cerebral Palsy Registry at the Institute of Social and Preventative Medicine (ISPM) at the University of Bern, and will be conducted in collaboration with the University Hospital Bern, the Swiss Children’s Rehab at the Children’s Hospital Zurich, and the Zurich University of Applied Sciences (ZHAW).
Key Data
Projectlead
Dr. Sebastian Grunt, Prof. Dr. Christina Schulze, Dr. Anne Tscherter, Prof. Dr. Hubertus van Hedel
Project team
Dr. Judith Graser, Selina Gredig, Johanna Linimayr
Project partners
Inselspital Bern; Universität Bern; Kinderspital Zürich - Eleonorenstiftung / Kinderreha Schweiz; Schweizerische Stiftung für das cerebral gelähmte Kind; pädiatrie schweiz Schweizerische Gesellschaft für Pädiatrie; Swiss Academy of Childhood Disability; Schweizerische Gesellschaft für Neuropädiatrie; Interkantonale Hochschule für Heilpädagogik
Project status
ongoing, started 01/2023
Funding partner
SNF-Projektförderung / Projekt Nr. 212587
Further documents and links
Publications
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The “sound of participation” with siblings’ voices: understanding participation of siblings of children with cerebral palsy, their roles in daily family life and intersections of family factors in Switzerland : a study protocol
2024 Linimayr, Johanna; Graser, Judith; Gredig, Selina; van Hedel, Hubertus; Tscherter, Anne; Grunt, Sebastian; Schulze, Christina
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‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions
2024 Linimayr, Johanna; Graser, Judith; Gredig, Selina; van Hedel, Hubertus; Grunt, Sebastian; Tscherter, Anne; Schulze, Christina