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Parti-CP: Barriers and facilitators for participation in children for cerebral palsy, their siblings and families in Switzerland

Description

The aim of Parti-CP is to gather profound knowledge about how children with CP, their siblings, and their families as a whole experience participation in Switzerland, then use this knowledge to formulate evidence-based recommendations. The mixed-methods study will include four work packages with qualitative and quantitative elements. Parti-CP is nested within the Swiss Cerebral Palsy Registry at the Institute of Social and Preventative Medicine (ISPM) at the University of Bern, and will be conducted in collaboration with the University Hospital Bern, the Swiss Children’s Rehab at the Children’s Hospital Zurich, and the Zurich University of Applied Sciences (ZHAW).

Key Data

Projectlead

Dr. Sebastian Grunt, Prof. Dr. Christina Schulze, Dr. Anne Tscherter, Prof. Dr. Hubertus van Hedel

Project team

Dr. Judith Graser, Selina Gredig, Johanna Linimayr

Project partners

Inselspital Bern; Universität Bern; Kinderspital Zürich - Eleonorenstiftung / Kinderreha Schweiz; Schweizerische Stiftung für das cerebral gelähmte Kind; pädiatrie schweiz Schweizerische Gesellschaft für Pädiatrie; Swiss Academy of Childhood Disability; Schweizerische Gesellschaft für Neuropädiatrie; Interkantonale Hochschule für Heilpädagogik

Project status

ongoing, started 01/2023

Funding partner

SNF-Projektförderung / Projekt Nr. 212587